Tuesday, December 12, 2017
Community Outreach

Community Outreach

Welcome to our Community Outreach Bulletin Board

 Because community is so important to us, we wanted to dedicate a special place on our website to showcase personal stories that have touched our hearts, and that we think will touch yours. We are proud to present you with these stories from others within our own community, and hope that you can find it in your own heart to help out wherever you can.

 We would be happy to include your story as well. If you have a personal story to tell, or something to offer, please do let us know by sending an email to This email address is being protected from spambots. You need JavaScript enabled to view it.">This email address is being protected from spambots. You need JavaScript enabled to view it.!

- See more at: http://www.michaelsdreamfoundation.org/index.php/for-items/item/77-community-outreach#sthash.UHmyVIQR.dpuf

Welcome to our Community Outreach Bulletin Board

 Because community is so important to us, we wanted to dedicate a special place on our website to showcase personal stories that have touched our hearts, and that we think will touch yours. We are proud to present you with these stories from others within our own community, and hope that you can find it in your own heart to help out wherever you can.

 We would be happy to include your story as well. If you have a personal story to tell, or something to offer, please do let us know by sending an email to This email address is being protected from spambots. You need JavaScript enabled to view it.">This email address is being protected from spambots. You need JavaScript enabled to view it.!

- See more at: http://www.michaelsdreamfoundation.org/index.php/for-items/item/77-community-outreach#sthash.UHmyVIQR.dpuf

 Welcome to our Community Outreach Bulletin Board

  Because community is so important to us, we wanted to dedicate a special place on our website to showcase personal stories that have touched our hearts, and that we think will touch yours. We are proud to present you with these stories from others within our own community, and hope that you can find it in your own heart to help out wherever you can.

  We would be happy to include your story as well. If you have a personal story to tell, or something to offer, please do let us know by sending an email to This email address is being protected from spambots. You need JavaScript enabled to view it.">This email address is being protected from spambots. You need JavaScript enabled to view it.!

 

On Thursday 31st October, the beautiful 18 month old Kian was diagnosed with Stage 4 High Risk Neuroblastoma. This is his battle….

Baby Kian had been weak, tired, suffering with temperatures and reluctant to use his legs for several weeks. After 5 trips to the doctors and 1 trip to A&E, they decided it had gone on for too long and were referring him to a pediatrician. A week and a half later whilst waiting for this appointment, Kian's temperature had shot through the roof and wasn't being controlled by calpol, he cried all the time, wouldn't stand up, wouldn't eat, wouldn't sleep or settle. His worried parents took him back to A&E and Kian was kept in and given a blood transfusion when they found that his oxygen levels were low. The hospital took blood tests, did x-rays and scans, and took a biopsy on his pelvis as they believed it was a virus.

After a week in hospital, Sam and Kat were told that their innocent baby boy had neuroblastoma and it was high risk. The cancer started above his left kidney on an adrenal gland where a tumor had developed and the cancer had spread to his bones, particularly at this point, across his pelvis.

They have been told he has 50/50 chance of survival and if his treatment is successful, there is 80% chance of a relapse. There is no relapse treatment in the UK and fundraising is for relapse treatment in the USA which costs £550,000.

Kian spent the weekend having his second blood transfusion and being drip fed a protein milk to build him up before his chemotherapy started on Tuesday 5th November. He has now finished chemo and to date is waiting for 3 weeks radiotherapy. His journey through chemo was heartbreaking, and after the radio he has a further 6 months of immunotherapy. So far from over at such a young age. Would be very grateful if you would consider any form of help.

Regards   Emma Marshall

Visit the "Caring for Kian" Facebook Page for information on how YOU can help - See more at: http://www.michaelsdreamfoundation.org/index.php/for-items/item/77-community-outreach#sthash.UHmyVIQR.dpuf

 

Visit the "Caring for Kian" Facebook Page for information on how YOU can help - See more at: http://www.michaelsdreamfoundation.org/index.php/for-items/item/77-community-outreach#sthash.UHmyVIQR.dpuf

Visit the "Caring for Kian" Facebook page for more information on how YOU can help

 

 

On September 2015, the Allen family moved into their new home. Dakota went exploring in the back garden and behind the shed found some containers with liquid inside. Dakota was curious as most children are and began to shake the can causing it to explode and burning over 70% of his body.  The previous owner had been storing dangerous chemicals and had just left them there. Dakota was flown to Boston from his home in Vermont and underwent several life saving surgeries. Dakota has been frequently experiencing hallucinations of being on fire.  This is a terrible thing to happen to anyone, let alone a ten year old boy. We must help  Kota get through his healing process with the love and prayers from all of you. Please visit the Gofundme page set up by his family to help the Allen's as they will be displaced for a long time as young kota will be in the hospital for a while.

You can also visit the Facebook page set up for him to offer your get well wishes and prayers, consider sending cards to Dakota here at 

Shriner's Hospital,C/O Dakota Allen
51 Blossom street .Boston, Ma. 02114

We here at Michael's Dream Foundation would like to send Kota some toys and books but we understand that he loves Disney movies and skateboarding , he was really getting into skateboarding before the tragic accident occurred.

Please donate to the MDF General Fund so we can arrange a really super awesome Michael's Dream Box for Kota.  I cannot help but think of Michael when I learned of Dakota, Michael would have been there for him right away. lets be there for him now, for Michael and for his family.   Please be charitable as we have a lot of giving to do and every little bit helps.

UPDATE

Dakota has endured 16 surgeries and needs to rest as his body is healing. Dakota will remain in the hospital in the meantime.

MDF has put together a Michael's Dream Box and it will be arriving at the hospital shortly for Dakota. The Dream Box comprises of a new 10 inch android tablet along with books from Dennis Christen and Brenda Jenkyns and donated toys.

We will post pictures when they become available. Please continue to pray for Dakota's recovery and many thanks to everyone for donating towards Dakota's Michael's Dream Box.

This is the story of how Zeke became my life. Feb 22, 2011 I found out I was 22 weeks pregnant. Two weeks later I found out I was having a boy! I was so excited! I worked up until three days before I delivered. I was contracting at a Fourth of July party and the next day I knew it was time. He was full term. I had to go in for an emergency C-section. I then found out that he had some issues.

I first noticed his skin tags around his jaw and ear. The doctors then told me he was missing his entire right ear. Then I saw his jaw was extremely underdeveloped. This is called Goldenhar. I was sad, mad, and confused. I didn't know what I had done to make this happen. I was afraid I wasn't going to be able to handle this and that baby deserved a mom that was perfect. It wasn't long before I knew I was meant to be his "perfect" mom.

He had several tests. We learned that his left "normal" ear had normal hearing and just mild loss on his right. It was a miracle. He had no ear! He can't feed orally but he wants to. His chin is too small and it tires him out to try. He has a long road ahead of him and there's no doubt that he will be amazing.

We met with a plastic surgeon and he decided that jaw surgery is the way to go. This of course made me nervous since they usually don't do this until the child is 4 or 5 years old. They will put in a device to stretch his jaw. I will have to tighten this daily just like you would braces for teeth.  He will wear this for about 6 weeks and then they will reevaluate. This could possibly help him eat on his own.

We meet the plastic surgeon before the surgery to explain his scans and the procedure in more depth. I will update as we go along. Wish us luck!!
   

Update

 Nov 15, 2012 8:28pm

One day I accidentally ripped out Zeke's tube and the hole closed up. He then was scheduled for a routine surgery and then came some complications. He threw up in surgery and developed pneumonia. He was then kept on a ventilator for days. They then thought we should do a jaw distraction since he would need it in 6 months anyway. I agreed. Since he was already put under and tubed I thought this was great so we wouldnt have to do this later. The surgery went well although his little lungs are not strong enough to take the breathing tube out yet. He has been sedated for 8 days now and will not be taken off the vent until at least next Monday or Tuesday. He will be on the vent for about a week and a half. They are turning his jaw to stretch it and he will soon have a better breathing passage when this is all said and done. Right now we are just waiting for him to be able to breathe on his own. I'm very ready for him to come home but i know he's getting some very good care.

  This is the website with Zeke's Story and his life journey as he under goes each surgery, his development and healing through:

http://www.caringbridge.org/visit/zekeallen

 

If you would like to help Zeke's mom with his care and needs, click the Donate button below which will direct you to PayPal:

 

July 25, 2013 - Zeke Helps MDF Make a Dream Box Delivery!