Monday, June 26, 2017

Zeke Allen

Thursday, 17 July 2014 10:38 Written by 

This is the story of how Zeke became my life. Feb 22, 2011 I found out I was 22 weeks pregnant. Two weeks later I found out I was having a boy! I was so excited! I worked up until three days before I delivered. I was contracting at a Fourth of July party and the next day I knew it was time. He was full term. I had to go in for an emergency C-section. I then found out that he had some issues.

I first noticed his skin tags around his jaw and ear. The doctors then told me he was missing his entire right ear. Then I saw his jaw was extremely underdeveloped. This is called Goldenhar. I was sad, mad, and confused. I didn't know what I had done to make this happen. I was afraid I wasn't going to be able to handle this and that baby deserved a mom that was perfect. It wasn't long before I knew I was meant to be his "perfect" mom.

He had several tests. We learned that his left "normal" ear had normal hearing and just mild loss on his right. It was a miracle. He had no ear! He can't feed orally but he wants to. His chin is too small and it tires him out to try. He has a long road ahead of him and there's no doubt that he will be amazing.

We met with a plastic surgeon and he decided that jaw surgery is the way to go. This of course made me nervous since they usually don't do this until the child is 4 or 5 years old. They will put in a device to stretch his jaw. I will have to tighten this daily just like you would braces for teeth.  He will wear this for about 6 weeks and then they will reevaluate. This could possibly help him eat on his own.

We meet the plastic surgeon before the surgery to explain his scans and the procedure in more depth. I will update as we go along. Wish us luck!!
   

Update

 Nov 15, 2012 8:28pm

One day I accidentally ripped out Zeke's tube and the hole closed up. He then was scheduled for a routine surgery and then came some complications. He threw up in surgery and developed pneumonia. He was then kept on a ventilator for days. They then thought we should do a jaw distraction since he would need it in 6 months anyway. I agreed. Since he was already put under and tubed I thought this was great so we wouldnt have to do this later. The surgery went well although his little lungs are not strong enough to take the breathing tube out yet. He has been sedated for 8 days now and will not be taken off the vent until at least next Monday or Tuesday. He will be on the vent for about a week and a half. They are turning his jaw to stretch it and he will soon have a better breathing passage when this is all said and done. Right now we are just waiting for him to be able to breathe on his own. I'm very ready for him to come home but i know he's getting some very good care.

  This is the website with Zeke's Story and his life journey as he under goes each surgery, his development and healing through:

http://www.caringbridge.org/visit/zekeallen

 

If you would like to help Zeke's mom with his care and needs, click the Donate button below which will direct you to PayPal:

 

July 25, 2013 - Zeke Helps MDF Make a Dream Box Delivery!